Monday 20 May 2013

The Isle of Man Hospice

When we flew back from Clatterbridge (Liverpool) Cancer Centre to the IOM Hospice, the nurses welcomed us back 'Nice to see you again.... Welcome back'.... Lovely welcomes to a place you'd rather not be.  Due to the type of pain Amanda is suffering, managing it is a serious problem.  I have incredible toothache at present, had it a few weeks, but it's just about becoming unbearable at night.  The entire jaw bone aches and throbs.  Anyone who has ever suffered tooth ache or a
trapped nerve will understand.  Well this is what Amanda is suffering around the back of her neck, shoulders and especially down her right arm constantly.  The pain is unbearable.  It has her tiny little frame writhing.  Seeing tears of pain and frustration welling in the eyes, then pouring down the face of the one you love most in the world really does hurt.  I'm left feeling helpless.  At times like these I try to get her to focus on control of her breathing through meditation, but sometimes it needs more.  Much more.

A couple of weeks ago they forgot to give Amanda her 12 hour slow release pain killer....  It's only happened once....
Amanda's slow acting painkiller had been increased to 16mg of hydromorphone twice daily. The day before yesterday they got mixed up and gave her 32mg in the morning.... A double dose!  It's only happened once.... Her pain was much reduced that day.... and it's lead to them discovering that she has a high tolerance for the stuff, same as she did with the midazolam (the doc said if he was giving anyone else the amount she was having they'd be laid out day and night, all it did with Amanda was relax the muscles at the back of her night).
In a plan to finally get home Amanda requested that the syringe driver (or chauffeur as I like to call it) of ketamine and midazolam was reduced and stopped over a couple of days.  It was removed this morning!  Freedom from the bungee cord of medication!  The error of two days ago has thus allowed them to increase the oral hydromorphone to higher level to compensate for the ketamine and midazolam being removed. This is good news.

Susie and her beau Gary arrived on the island from Banbury yesterday evening, I was their meet and greet at the airport.  Amanda is looking forward to heading to her sisters (down the road from the hospice) around lunch time, where we will prepare some delightful manx lobster for our guests.  She will be head chef barking orders, and I will be sioux chef chopping, blending, blitzing and cooking.  I do hope they enjoy it.
The weather had been so lovely all week, but this morning the curtains were thrown open to a grey rather miserable looking day.  Hopefully it won't spoil their brief stay.

Bye for now!

Weekend went great.
Amanda's syringe driver has been removed, she is now on oral medication only.


What is Amanda doing healing wise....
since allopathic/conventional medicine can only stall the progress of her condition?

Protocel 50 (food supplement used in the US for cancer patients since mid eighties)
Paw Paw extract supplements
Soursop tea (fresh leaves from Australia)
Laetrile (Apricot Kernels, high in vitamin B17)
Black Cumin Seed Oil (Used in the Middle East as a cancer supplement)
Coffee Enemas

Meditation has been difficult due to painkillers, anti-inflammatories and sedatives.... Finding contact with the mind can be very difficult when you are falling asleep, hazy or in lots of pain.  Once we get home she hopes to bring her focus back on to the emotional process of healing too.

Her diet in the hospice hasn't been great  (great food, but not necessarily healthy), so once we get home (next few days hopefully) we can get back on organic 80% raw cancer styled food regime.  It has to be enjoyable though....

2 comments:

  1. I have someone I've been praying for who is suffering in Hospice for end stage Lyme disease. I have been trying to get them to use Black Seed Oil for a while now. I Googled Black Seed Oil and Hospice and your blog showed up. I am surviving cancer and I enjoyed your blog today and pray for your journey.
    1 Peter 5:10 (NASB) After you have suffered for a little while, the God of all grace, who called you to His eternal glory in Christ, will Himself perfect, confirm, strengthen and establish you.
    It is very simple to believe in Jesus Christ for life here and for eternity. Simply believe that he died for all the sins of the world past, present and future so we could have fellowship with God eternally. This is the good news of the Gospel. It is not always presented correctly. Christianity today but it is not about man goodness it is about God's perfect gift. So if you have not already done so or if Salvation is unclear, believe Jesus when He said, I am the way, the truth and the life and no man comes to the Father except by me. It is Faith Alone in The Lord Jesus alone that secures eternal life.
    I am praying for Spiritual and Physical healing and for alleviation from pain. I have to quote I Peter 5:10 to myself often I hope my words bring you life.

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  2. I am sorry Mark for your loss. I only noticed Posted by Mark Boyd at 11:02 a.m. not the 2013 date. I purposely wrote without reading more because I knew I had arrived here today by providence. Now the intended hearer is you not Amanda. There is no greater comfort than from the one who created us. Please consider the Good News for your life. There is a reason you are still here.

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